Power of the Patient Voice [11 am – 12 noon] Register for this free event HERE.
At the Institute of Metabolism & Systems Research (IMSR) at the University of Birmingham, we are committed to engaging and involving patients and their support networks in our research. We firmly believe that lived experience perspectives can be invaluable in prioritizing and improving the quality of research. IMSR frequently works in collaboration with patient charities that play a vital role in advocating on behalf of patients and their families. For this event, we invite you to meet a number of charities and lived experience representatives collaborating with IMSR researchers. You’ll find out more about their work and we will also discuss what else can be done to better coordinate research advocacy efforts in general. We are pleased to be joined by:
- Jo Grey, CEO of AMEND and Professor Wiebke Arlt
- Lorraine Williams, Director of The Thyroid Trust, artist Vicky Roden and Professor Chris McCabe
- Kristine Stacke, Trustee of Verity – The UK PCOS Charity and Dr. Punith Kempegowda
PCOS Awareness: How do we engage others by working together? [12.30 pm – 1.30 pm] Register for this free event HERE.
Join us for a special 1-hour workshop in collaboration with some of the DAISy-PCOS Leaders and Kristine Stacke, a charity representative from Verity – The UK PCOS Charity, as well as researchers working on the DAISy-PCOS research project in the Institute of Metabolism and Systems Research (IMSR) at the University of Birmingham. We will discuss what polycystic ovary syndrome (PCOS) is and why it is important to engage other people on this important topic. In particular, we’ll explore Awareness Months and Events: We’ll discuss what motivates people to take part in awareness-raising events and we’ll even dream up ideas for how to engage others by working together in friendly and informal breakout discussions. This is a free, event and all are welcome. We would particularly like to encourage people with polycystic ovary syndrome to join us, as we would love to hear your views and ideas for how to raise awareness and engage wider society on PCOS.
DAISy-PCOS 