Power of the Patient Voice [11 am – 12 noon] Register for this free event HERE.
At the Institute of Metabolism & Systems Research (IMSR) at the University of Birmingham, we are committed to engaging and involving patients and their support networks in our research. We firmly believe that lived experience perspectives can be invaluable in prioritizing and improving the quality of research. IMSR frequently works in collaboration with patient charities that play a vital role in advocating on behalf of patients and their families. For this event, we invite you to meet a number of charities and lived experience representatives collaborating with IMSR researchers. You’ll find out more about their work and we will also discuss what else can be done to better coordinate research advocacy efforts in general. We are pleased to be joined by:
- Jo Grey, CEO of AMEND and Professor Wiebke Arlt
- Lorraine Williams, Director of The Thyroid Trust, artist Vicky Roden and Professor Chris McCabe
- Kristine Stacke, Trustee of Verity – The UK PCOS Charity and Dr. Punith Kempegowda
PCOS Awareness: How do we engage others by working together? [12.30 pm – 1.30 pm] Register for this free event HERE.
Join us for a special 1-hour workshop in collaboration with some of the DAISy-PCOS Leaders and Kristine Stacke, a charity representative from Verity – The UK PCOS Charity, as well as researchers working on the DAISy-PCOS research project in the Institute of Metabolism and Systems Research (IMSR) at the University of Birmingham. We will discuss what polycystic ovary syndrome (PCOS) is and why it is important to engage other people on this important topic. In particular, we’ll explore Awareness Months and Events: We’ll discuss what motivates people to take part in awareness-raising events and we’ll even dream up ideas for how to engage others by working together in friendly and informal breakout discussions. This is a free, event and all are welcome. We would particularly like to encourage people with polycystic ovary syndrome to join us, as we would love to hear your views and ideas for how to raise awareness and engage wider society on PCOS.
We have two events to mark International Women’s Day 2021 this March….
Our health matters, period: Inequity in women’s healthcare.
When: Saturday March 6th, 2021 at 11 am – 12:30pm
Where: Online Zoom event, find out more & register here
To mark International Women’s Day 2021, join us for an online community-led panel discussion focused on inequity in women’s healthcare. Using Polycystic Ovary Syndrome (PCOS) as a case study on which to frame this broader discussion, diverse women involved in the DAISy-PCOS Leadership Programme will lead the event and share their personal experiences to highlight how gender and cultural factors influence medical gaslighting, healthcare access & management and even the progress of research itself. This is an inclusive event, all genders and backgrounds are welcome. Join our audience Q&A and shares your own thoughts online using @daisypcos #IWD2021
PCOS at the Intersections.
When: Thursday March 11th, 2021 at 6-7.30 pm
Where: Online Zoom event, find out more & register here.
Our understanding of PCOS is very limited, whether that be medically, or in terms of lived experience. In collaboration with Cysters and The DAISy PCOS Leadership Programme, we will be discussing the impact that race has on our experiences of PCOS, and what the healthcare industry can do to rectify inequalities across the intersections. Join us for PCOS storytelling, panel-led discussions, and Q+A.
Women of colour are generally excluded from research, from forming part of the social discourse around these conditions – and this is something we would like to see change. Our panel consists of 6 women of colour, all within their respective fields in relation to the condition. Our session will be moderated by Neelam Heera, the Founder of Cysters.
PCOSoc Fitness Challenge!
Starting from the 15th of March, but join at any point – this challenges runs for 21 days!
Join the University of Birmingham PCOS Society (PCOSoc) for a 21 day fitness challenge. No equipment needed, you can do activities indoors or outdoors and very little space is needed. You can also break up your activities throughout the day to make them more manageable. Get involved by signing up here. PCOSoc was set up by Sophie Broughton, a member of the DAISy-PCOS Leadership Programme to raise awareness of Polycystic Ovary Syndrome amongst University students and to create events and platforms to share, learn and discuss PCOS with peers.
Saturday 26th September 2020: (11am-1pm) | PCOS Awareness Month: Perspectives on PolyCystic Ovary Syndrome | Register on Eventbrite via this link
This September, the Institute of Metabolism and Systems Research (IMSR) is pleased to invite you to a free, public webinar to mark PCOS Awareness Month.
PolyCystic Ovary Syndrome (PCOS) affects at least 1 in 10 women worldwide and commonly causes irregular periods and difficulties trying to conceive. Previous research by the University of Birmingham has found that women with PCOS also have an increased risk of metabolic disease, such as diabetes, high blood pressure and heart disease.
Yet despite the metabolic underpinnings and prevalence of PCOS in society, women with PCOS still often experience stigma and shame, with many reporting difficulty discussing the condition with their family, friends and even healthcare professionals. Many women with PCOS also suffer from anxiety and depression. We believe it is important to raise awareness of, and open dialogue on, PCOS through wider public engagement and involvement activities. We hope you will join us to learn more about a lifelong condition which likely affects at least one woman in your life.
Our keynote speakers will each give a short presentation about their research and clinical experience involving women with PCOS. This will be followed by a question and answer panel discussion session with further PCOS experts – including lived experience representatives from charity partners Cysters and PCOS Vitality.
Attendees will have an opportunity to submit questions as part of the registration process and on the day itself. We hope you’ll be able to join us! Register now on Eventbrite